A special order.
two months ago, approximately, I received a mail from a mom who told me he had read the story of John on the Internet. Surely wrote Ohtahara syndrome · ¨ in Google, and so we found. She is Soledad, the mother of the little Lion of 7 months, who also suffers from this terrible disease.
was hard to meet someone who is just starting to walk this difficult path. I relived those early months of John's life, when all was uncertainty, pain, fear. But above all I felt the need to help de alguna forma. Se por lo que esta familia está pasando.
Siempre digo que me hubiese gustado tener el apoyo de alguien que haya vivido esto de cerca, cuando me dieron el diagnóstico de Juan. Alguien que me diga que yo iba a poder salir de ese estado de shock. Ahora me encuentro del otro lado, siendo la que tiene que brindar ese apoyo.
Hoy me escribió Soledad muy angustiada. Las convulsiones de León se están haciendo cada vez más seguidas, le están aumentando la dosis de la medicación pero sin buenos resultados. Me encantaría poder decirle que ya va a pasar, que ya se le van a ir, que va a estar mejor. Pero es algo que yo no puedo saber. Me pone mal no tener una respuesta para darle, porque tampoco la tengo para me. But I can do anything for her. I can hear it, I can contain it and tell all that God is my support. It is he who renews my strength, which helps me through all this. And those who know me know that this is real me.
I ask the followers of John and pray for him always, which also take their prayers to Leon and his parents.
Soledad: I understand your pain, because it is the same as mine. We both know the helplessness he feels at not being able to do something concrete to stop seizures. Love your son and that like me, not change it for anything. I pray for you, so you can feel that God is holding. Yesterday
0 comments:
Post a Comment